04311nas a2200469   4500000000100000008004100001260000800042100002000050700001600070700002200086700002000108700002100128700001800149700002400167700002300191700001800214700001600232700002100248700001700269700001700286700002000303700001500323700001500338700001500353700001800368700001900386700001700405700001600422700002300438700001700461700001700478700001200495700001800507700002600525700001600551700002000567245015000587300001100737490000700748520307200755022001403827       2023                            d  cmar1 aMaria Hägglund1 aAnna Kharko1 aJosefin Hagström1 aAnnika Bärkås1 aCharlotte Blease1 aÅsa Cajander1 aCatherine DesRoches1 aAsbjørn Fagerlund1 aBarbara Haage1 aIsto Huvila1 aIiris Hörhammer1 aBridget Kane1 aGunnar Klein1 aEli Kristiansen1 aKerli Luks1 aJonas Moll1 aIrene Muli1 aEline Raphaug1 aHanife Rexhepi1 aSara Riggare1 aPeeter Ross1 aIsabella Scandurra1 aSaija Simola1 aHedvig Soone1 aBo Wang1 aMaedeh Zolbin1 aRose-Mharie Åhlfeldt1 aSari Kujala1 aMonika Johansen00aThe NORDeHEALTH 2022 Patient Survey: A Cross-Sectional Survey of National Patient Portal Users in Norway, Sweden, Finland, and Estonia (Preprint)  ae475730 v253 a<p>Background: Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH. Objective: We aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia. Methods: A cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged 15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics. Results: In total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.3%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as fair (11,279/29,302, 38.48\%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record 2 to 9 times (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it more than 20 times (4571/13,008, 35.14%). Conclusions: This is the first large-scale international survey to compare patient users sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey.</p>  a1438-8871